As a Christmas present to my father, I’ve taken the website that he lovingly created for members of this support group, and brought it into the 21st century. My father has spent countless hours researching the contents found within these pages, first as a medical provider and a passionate physician’s assistant for many years, and then as a father whose youngest daughter was born without an esophagus some 24 years ago.
It will take time to update all of the content found on this site, but please know we want this to be an open source of information sharing and collaboration, so share what findings you have with us and we will publish them for everyone to learn. And most importantly, let this place be a one of refuge, comfort and support. My father has made himself available to families around the world 24-hours-a-day, seven days a week, to provide medical advice, resources or just a friend to listen to all that you’re going through.
Thank you for your continued support for this cause, and welcome to our new gathering place!